FOP turns children into human statues.
A healthy mind locked inside a frozen body. A cure is near, but we need to keep research funded to perfect it in time for those with FOP. Your role is crucial in preventing one of the world’s most debilitating conditions – forever! Hope rests with people like you, people who care.
What is FOP ?
Fibrodysplasia ossificans progressiva (FOP) is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone, forming bone outside the skeleton that constrains movement.
FOP becomes apparent early in childhood. Infants are usually born with short, malformed big toes. Bone and joint problems make it hard for babies to learn to crawl. About half of people with FOP also have malformed thumbs.
Unfortunately, there is no effective treatment for fibrodysplasia ossificans progressiva (FOP). Surgery is not an option for removing the excess bones because surgery often results in more bone formation. And these new bones don’t disappear on their own.
You are not alone
FOP India connects all India FOP Patients with best available doctors & hospitals.
FOP India provides support & information to FOP patients and families in India. Accurate information and connection with others is crucial when dealing with an ultra rare or orphan disease like FOP.
FOP India raises awareness of FOP in the community, including the medical community, on the symptoms, diagnosis and medical management of FOP.