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Latest News on FOP

‘This Assistance Has Been Life-Changing’

‘This Assistance Has Been Life-Changing’

L.I.F.E. Award Grant makes it easier for professional with FOP to work from home Kathleen Degenhardt works from home. She also has FOP, which makes it difficult for her to perform some tasks. She learned about the Harold & Elaine Kaplan Quality of L.I.F.E....

What’s New with In Pursuit of a Cure 2023?

What’s New with In Pursuit of a Cure 2023?

Connect with FOP researchers, meet new families and more! You'll notice a few things are brand new for this year's In Pursuit of a Cure campaign. But the most important part of the campaign is the same — you! Read on for a quick update on...

Clementia Announces Updated Phase 2 Part B Data on Palovarotene for FOP

Clementia Announces Updated Phase 2 Part B Data on Palovarotene for FOP

Clementia Pharmaceuticals Inc., a clinical-stage biopharmaceutical company innovating treatments for people with ultra-rare bone disorders and other diseases, today announced updated data from the open label extension (“Part B”) of its ongoing Phase 2 clinical trial...

Human skeletal stem cells identified

Human skeletal stem cells identified

Human skeletal stem cells that become bone, cartilage, or stroma cells have been isolated from fetal and adult bones. This is the first time that skeletal stem cells, which had been observed in rodent models, have been identified in humans. The researchers were also...

Regeneron’s LUMINA-1 Trial hosted by FOP Friends

Regeneron’s LUMINA-1 Trial hosted by FOP Friends

Learn more about Regeneron's LUMINA-1 clinical trial presented by Dr. Richard Keen from the Royal National Orthopaedic Hospital in England. This webinar is hosted by FOP Friends in the United Kingdom http://fopfriends.com/. Source: FOPnews